Genetic and Community Resources

Care Connection for Children

A partner in the Virginia Children’s Special Healthcare Needs network—This is a statewide network of regional programs that provide health care coordination, community resources to children that live in Virginia, are under 21 years old, and have a physical disorder that is expected to last 12 months or longer.  Call about your child or refer a patient: Phone 804-827-1795 Toll free 866-737-5965

Early Intervention Services

Find out if you child needs therapy to help meet developmental milestones or refer a patient by calling 800-234-1448 (general hotline)

• Birth Defects
  • http://www.marchofdimes.com/
  • http://www.nlm.nih.gov/medlineplus/geneticsbirthdefects.html
    
    
• Cancer & Cancer Genetics
  • http://www.cancer.org/
  • http://www.facingourrisk.org/
  • http://www.peoplelivingwithcancer.org/plwc/Home/1,1743,,00.html
    
    
• Centers for Disease Control & Prevention (CDC)
  • http://www.cdc.gov/
    
    
• Chromosome Disorders
  • http://www.ndss.org/
  • http://www.chromodisorder.org/
  • http://www.rarechromo.org/
  • Trisomy 18, 13, & Related Disorders
    
    
• Clinical Trials
  • http://clinicaltrials.gov/ct/gui/c/a2b/screen/SimpleSearch?JServSessionIdzon
    
    
• Genetic Conditions
  • Understanding Genetic Conditions –Genetics Home reference
  • http://www.nlm.nih.gov/medlineplus/geneticdisorders.html
  • Medline Plus - English
  • Medline Plus - Spanish
  • http://www.yourgenesyourhealth.org/
    
    
• Genetic Organizations, Education, & Societies
  • The American College of Medical Genetics  
  • Coalition of State Genetics Coordinators
  • The National Society of Genetic Counselors Learn about what a genetic counselor can offer you
  • Virginia Association of Genetic Counselors
    
    
• Genetic Testing
  • http://www.genetests.org/
    
    
• Genetics Education
  • Genetics Education Center
  • National Coalition for Health Professional Education in Genetics
    
• Rare Diseases
  • http://www.rarediseases.org/
    
    
• Support Groups
  • http://www.geneticalliance.org/

   

  Disclaimer: The above links are informational only. VCU/VCUHS has no responsibility for the information provided.